WHAT WE DO.
The IDSC is operated 100% by volunteers. We do not have a single paid position. Any donations that come to the IDSC are used so we can further assist in our mission and help us to continue to offer what we do. Your support of our efforts is greatly appreciated.
1) Offer support to parents who are new to the Down syndrome diagnosis.
- We connect parents to each other through IDSC Connect groups.
- Share with them up to date information.
- Direct parents to their local DSA. (Down syndrome associations)
- Direct parents to organizations that will help them facilitate an adoption plan, if they decide on the adoption option.
2) Create awareness about Down syndrome.
- Through Facebook, Twitter, Instagram, newsletters, and e-blasts.
- Yearly World Down Syndrome Day video.
- Contacting politicians, media, physicians to make them aware of the issues, and asking our members to contact them as well.
3) Connect to the Down syndrome associations as a resource to them and their members.
- The DSA's refer their members to us who would like to advocate about the issues we address.
- We update DSA's about the current issues.
4) Connect to the national Down syndrome organizations as a resource to them and their members.
- Refer those who contact us to the national groups.
- We collaborate with the national groups about the current issues.
- We are an affiliate of the NDSC, NDSS, and the IMDSA
5) The media will very often write about Down syndrome. Often times, even those who are trying to help us, inadvertently hurt, by using words like "suffering, disease, or down syndrome girl/boy etc" to describe our loved ones. We contact them, and kindly ask them to use people first language, as this shows the dignity for the life of each person.
6) Finally, we share the wonderful things our loved ones with Down syndrome are doing as they share with the world that every life is precious. Not only do they do an amazing job of advocating about their wonderful lives, but they also advocate on behalf of those who cannot advocate for themselves; those who are diagnosed prenatally. We are honored to stand with them telling the world that every life is precious and deserves dignity.