Adult Guardianship Handbooks by State

The Adult Guardianship Handbooks by State provides a listing of guardianship information for each state.

Supported Decision Making

Some states have passed laws to require the legal system to recognize supported decision making documents and wishes as an alternate to guardianship. Please visit the Supported Decision Making website for more information.

Clinics and Physicians Specializing in Adults with Down Syndrome

The Road We've Shared has compiled a list of clinics and physicians who specialize in treating adults who have Down syndrome.

Down Syndrome Health Care Guidelines

The Down Syndrome Health Care Guidelines are based on the 1999 Down Syndrome Health Care Guidelines for Individuals with Down Syndrome as published in Am Fam Physician. 2001 Sep 15;64(6):1031-1039.


Studies suggest that more than 75 percent of those with Down syndrome aged 65 and older have Alzheimer's disease, nearly 6 times the percentage of people in this age group who do not have Down syndrome.

The Alzheimer's assocation has compiled a list of 10 signs to assist in early detection of Alzheimer's.


The goal for the Down Syndrome Clinical Trials Network (DS-CTN) is to carry out clinical trials more rapidly with the readiness of clinical sites and the availability of ready-to-enroll participants with Down syndrome. This is important, because several promising interventions to improve health and independence for individuals with Down syndrome are ready to enter clinical trials in the next 5 years that will require hundreds of participants in each.